Sunday, October 30, 2011

Knowing When

to keep your freakin' mouth shut! I just read something that made me pretty annoyed.  I've blogged in regards to the Clausings before... They decided that they wanted to buy a ParaPodium for Ryan and are thrilled about this piece of equipment allowing Ryan another form of independence and freedom and of course weight bearing etc.and specifically requested that if you didn't have something nice to say, don't say anything. But, somebody did despite that, stating that they thought it wasn't safe and there were to many risks that outweighed the benefits,  .

Here's my thing, just because a piece of equipment won't work for you doesn't mean it won't work for someone else.  Encourage or shut up.  We all need to share information, sure but, we need to support each other.

Sunday, October 9, 2011

I Can't...

I just can't close this blog.. I've tried several times and welll... I'm still here...

My standing chair was denied.  They sent the letter to my boss and cc'ed me. They didn't even send a copy to my OT.   I lost it. I was PISSED.  I phonedd my OT, and I looked into work benefits and what they will cover.  I'm still working on that.

I returned to PT to start working on wheelchair skills and it is going very well... I really like my new therapist and she's got some great ideas about how I may be able to start doing some walking again.   Pool therapy is one of the ways we will be trying, hopefully so that's exciting.

I will also be returning to Hippotherapy in about a week and half and have gone back to being in my manual chair full time with the occasional "lazy day." where I opt for the power chair. 

I again ended up in the medi-clinic with touble breathing and they have yet to find a cause and also figured it was minor enough to leave me sitting in a waiting room for well over half an hour.  My brother (who is a paramedic) was NOT pleased and just about ended up taking me to the ER. 

So needless to say, things are far from dull and I have very little time to write anymore but, I figure that once every few weeks is better than keeping it all in my head.. that's how people go crazy :)

J