Ok folks. This blog is going on the back burner for a while. I go back to school tomorrow and I am still sick (I am going back to the doctor, I swear) I am only taking one class but it is Math and we all know how well that has gone in the past. I am also still going to be working full time and as of tomorrow, have some new duties. Point being, spare time will be scarce. I also have to find time to squeeze in Hippotherapy, PT, and maybe OT.
In all perfect honesty therapy is taking a back burner, also. Am I proud of that? No. Do I need to change that? Yeah. I was going to make time for standing until that stupid spot on my toe opened up. No AFOS or standing for me right now.
I am still waiting on news about my standing chair. I really would like to know about that soon. It's been almost a month since my boss and OT sent in their letters
Anyways, prayers for me to feel better and for school and working full time to pan out, as well as positive news about my standing chair to come soon would be much appreciated. I would also like to ask that you please say prayers for a family member who is having some health issues and the rest of his family (I would explain, but I'mm not sure if they would want that)
Thanks for reading!
J
Sunday, August 28, 2011
Saturday, August 20, 2011
Trip to the ER.
I ended up in the ER on Wednesday night. I was at work and could barely make through a call because I felt like I couldn't breathe so the boss man told me to go to the hospital. I hate hospitals, so I resisted at first but ended up going. See, sometimes my shoulder makes it hurt to breathe because my pecs get tight, so I thought it was that, but when it got to the point I could barely speak... well. When I got into the ER my heart rate was at 140 when it's supposed to be between 60-100. They gave me two bags of fluid and took a chest xray, did an ECG, checked for UTI, and did a blood test. All clean. By this time, my heart rate was down. The doctor came in and said she thought it was viral sepsis but put me on an antibiotic? Tell me how that makes sense please. She said something about how because I am not as mobile, they wanted to give me an antibiotic "just in case". Whatever. I'm going to get on my soapbox for 30 seconds. I hate when ER docs just throw med and 3 different diagnosis's at you. FIGURE IT OUT! THEN AND ONLY THEN SEND ME HOME! She told me to go home and back to work. You just told me I had viral sepsis....This is also 5/12 hours after I originally got there and I'm tired. Get in the car, go pick up the prescription, get something to eat, and head home. I get in my chair and get up the driveway no issues. I go to get on the lift and very quickly it is brought to my attention the wheelie bars are not down. Head meets concrete. It's dark. It's late. It's cold. My arm hurts, my chest hurts, and now my head hurts. I'm exhausted. I'm stressed. Breakdown time. Get over that and get in the house Mom asks if we should go back to the hospital. What, so she can give me three more diagnosis? I eat and go to sleep but, she has to wake me up every twenty minutes to make sure I didn't have a concussion.
I tried to go back to work yesterday and I made it through, but I wasn't on the phone for most of my shift, it was just to difficult with a sore chest and ribs.
Prayers for me to feel better and continued prayers for John Matthew would be very appreciated.
J
I tried to go back to work yesterday and I made it through, but I wasn't on the phone for most of my shift, it was just to difficult with a sore chest and ribs.
Prayers for me to feel better and continued prayers for John Matthew would be very appreciated.
J
Sunday, August 14, 2011
You'll Figure it Out
This week has been a mix of emotions and it came out even more after I read Cassie's blog post for Caleb and it made me cry.
I have struggled this week with my drivers eval situation. Yes, I want to know, but, I don't. I can't forget the day my OT did all that testing and the words he said after. Normally, when a therapist tells me something might not or will not happen, I move along. Not this therapist, Not this thing. I remember the day. The time. The feeling in my stomach. The lump in my throat. What shirt he was wearing for crying out loud. The look on his face. The look that said it all without his lips even moving. The way I struggled to say anything. How bad I wanted to yell at him; tell him he was wrong. Tell him to redo the testing. Tell him to take the results and shove them. Tell him to fuck off. Tell him he's my therapist, he's supposed to encourage and support, help, and accomplish. Fix things. At that moment it literally felt as though he had put my heart between his hands, and in one swift move, broken it in to tiny little fragments. I slowly put it back together, but there is still a huge scar. With the talk of the road test, it's opening, bit by bit and I'm scared it's going to be ripped open. Every time someone makes a joke about me driving, I laugh, but little do they know how bad that humor stings. People keeping say to relax. I'll do fine. I'll figure it out. Sometimes though, I wish it didn't take "figuring out". I wish it just happened like it does for others my age. I wish I didn't need to book 500 different appointments with 500 different therapists. I wish it didn't take months, countless phone calls, emails, appeals, letters, voice mails, and faxes just to find out about some equipment. All I'm sayin' is, it would be cool if things could be simpler sometimes is all.
Proverbs 3:5: “Trust in the LORD with all your heart and lean not on your own understanding.”
J
I have struggled this week with my drivers eval situation. Yes, I want to know, but, I don't. I can't forget the day my OT did all that testing and the words he said after. Normally, when a therapist tells me something might not or will not happen, I move along. Not this therapist, Not this thing. I remember the day. The time. The feeling in my stomach. The lump in my throat. What shirt he was wearing for crying out loud. The look on his face. The look that said it all without his lips even moving. The way I struggled to say anything. How bad I wanted to yell at him; tell him he was wrong. Tell him to redo the testing. Tell him to take the results and shove them. Tell him to fuck off. Tell him he's my therapist, he's supposed to encourage and support, help, and accomplish. Fix things. At that moment it literally felt as though he had put my heart between his hands, and in one swift move, broken it in to tiny little fragments. I slowly put it back together, but there is still a huge scar. With the talk of the road test, it's opening, bit by bit and I'm scared it's going to be ripped open. Every time someone makes a joke about me driving, I laugh, but little do they know how bad that humor stings. People keeping say to relax. I'll do fine. I'll figure it out. Sometimes though, I wish it didn't take "figuring out". I wish it just happened like it does for others my age. I wish I didn't need to book 500 different appointments with 500 different therapists. I wish it didn't take months, countless phone calls, emails, appeals, letters, voice mails, and faxes just to find out about some equipment. All I'm sayin' is, it would be cool if things could be simpler sometimes is all.
Proverbs 3:5: “Trust in the LORD with all your heart and lean not on your own understanding.”
J
Wednesday, August 10, 2011
My iPod is Broken :(
It's b-r-r-r-o-k-e-n. But, seriously, this is the second time the headphone jack has come loose like, come on.
The letters of appeal have been sent in for my standing chair. My boss and OT wrote one so, go them! Hopefully it's enough and it wasn't a colossal waste of time. I'm keeping my fingers, toes, AND eyes crossed :). Ok, not quite.
I have been booked for a driver evaluation. In case anyone wondered, it's on January 19th at 8am. I HIGHLY suggest you stay off the sidewalks. The lady I spoke with did say that 80% of the people she sees with CP do have perceptual issues and that this is not an automatic "No, not a chance." It could mean I need more practice. She did also say that she will be able to tell me whether or not this is something that can be accomplished. If it is, I will be working with I would assume, an OT. When the OT feels I am ready to drive alone, they will report to her.
Work is going very well. I am actually training someone else right now and it's harder than it seems. Not because of the person but, because I don't like being critical of others. I'm working on it. I must be doing well, though because my boss has asked me to keep doing it. I'm not bragging, just excited :).
Please keep John Matthew in your prayers. He's had a rough day and could use them.
As for me, I would ask that you continue to pray in regards to the standing component and approval from insurance for funding/ installation. I would also ask for prayers in regards to school I am returning to school in 3 weeks and am still going to try and work full time (I will be allowed to work on schoolwork at work) so prayers that it will go well would be appreciated.
J
A merry heart doeth good [like] a medicine: but a broken spirit drieth the bones.
Proverbs 17:22
The letters of appeal have been sent in for my standing chair. My boss and OT wrote one so, go them! Hopefully it's enough and it wasn't a colossal waste of time. I'm keeping my fingers, toes, AND eyes crossed :). Ok, not quite.
I have been booked for a driver evaluation. In case anyone wondered, it's on January 19th at 8am. I HIGHLY suggest you stay off the sidewalks. The lady I spoke with did say that 80% of the people she sees with CP do have perceptual issues and that this is not an automatic "No, not a chance." It could mean I need more practice. She did also say that she will be able to tell me whether or not this is something that can be accomplished. If it is, I will be working with I would assume, an OT. When the OT feels I am ready to drive alone, they will report to her.
Work is going very well. I am actually training someone else right now and it's harder than it seems. Not because of the person but, because I don't like being critical of others. I'm working on it. I must be doing well, though because my boss has asked me to keep doing it. I'm not bragging, just excited :).
Please keep John Matthew in your prayers. He's had a rough day and could use them.
As for me, I would ask that you continue to pray in regards to the standing component and approval from insurance for funding/ installation. I would also ask for prayers in regards to school I am returning to school in 3 weeks and am still going to try and work full time (I will be allowed to work on schoolwork at work) so prayers that it will go well would be appreciated.
J
A merry heart doeth good [like] a medicine: but a broken spirit drieth the bones.
Proverbs 17:22
Friday, August 5, 2011
No Creative Title Found....
SAHO and the Health Sciences Association have reached a new agreement. It was put to a vote and 87% of the people voted in favor... There are still some seriously angry people...
My OT has put in his letter of appeal for my standing chair and I will be talking to my boss on Monday (I have a nasty cold, so I called in sick today.) to see if he would still be willing to be a part of the appeal process as far as vocational purposes are concerned as my OT feels that would carry some weight for them to have a letter from him, as well.
As far as things go right now, it's busy, but things seem to be getting dealt with. At the side of the page, you will see a link to Emerson's page. Please keep her and her family in your prayers and also please say a prayer for John Matthew Davis as he is facing some major surgery and recovery in the next few weeks (http://www.caringbridge.org/visit/johnmatthewdavis)
Please say a prayer that my boss will still be willing to help out with the appeal process and that the letters will be enough for an approval of funding and permission for the component to be put on the chair. Please also pray that work continues to go well and that I am feeling better soon!
But know that the Lord hath set apart him that is godly for himself: the Lord will hear when I call unto him.
Psalms 4:3
J
My OT has put in his letter of appeal for my standing chair and I will be talking to my boss on Monday (I have a nasty cold, so I called in sick today.) to see if he would still be willing to be a part of the appeal process as far as vocational purposes are concerned as my OT feels that would carry some weight for them to have a letter from him, as well.
As far as things go right now, it's busy, but things seem to be getting dealt with. At the side of the page, you will see a link to Emerson's page. Please keep her and her family in your prayers and also please say a prayer for John Matthew Davis as he is facing some major surgery and recovery in the next few weeks (http://www.caringbridge.org/visit/johnmatthewdavis)
Please say a prayer that my boss will still be willing to help out with the appeal process and that the letters will be enough for an approval of funding and permission for the component to be put on the chair. Please also pray that work continues to go well and that I am feeling better soon!
But know that the Lord hath set apart him that is godly for himself: the Lord will hear when I call unto him.
Psalms 4:3
J
Wednesday, August 3, 2011
What Do Ya' Know?
He returned my phone call! He even answered my page this time! Also, apparently he answered the last one, also, but I hung up to soon. Whoops (he used to ignore his pager while he was working with me, how was I supposed to know he wasn't ignoring it?) Anyways, he is submitting an appeal to insurance to have them pay for the standing component and if they refuse to do that, he is subsequently requesting that they allow me to put the component on the chair. My riding therapist has also given me a new source for funding if this is the case, so I'm looking into that and they may also pay for the cost of my riding therapy and mileage to and from. My boss also offered to speak to insurance and OT about the standing chair. It takes an army, but at least I have one to back me up :).
Speaking of riding... I stood for 30 second independently. 30 SECONDS!! I repositioned. I caught my balance. I used trunk and back muscles! When I called my OT back (he called while I was riding) he asked how I went, I ALMOST screamed about the whole thing, but then decided to be rational and just say good. I told everybody at work today, though.
So all in all, a better today full of new things and new reasons to hope.
J
We must accept finite disappointment, but never lose infinite hope.
Martin Luther King, Jr.
Speaking of riding... I stood for 30 second independently. 30 SECONDS!! I repositioned. I caught my balance. I used trunk and back muscles! When I called my OT back (he called while I was riding) he asked how I went, I ALMOST screamed about the whole thing, but then decided to be rational and just say good. I told everybody at work today, though.
So all in all, a better today full of new things and new reasons to hope.
J
We must accept finite disappointment, but never lose infinite hope.
Martin Luther King, Jr.
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